LIVE BUTTERFLY RELEASE FOR OCTOBER SUDEP-EPILEPSY AWARENESS MONTH
Don't miss out, register today. Tickets are limited!
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Don't miss out, register today. Tickets are limited!
Gulf Coast Epilepsy Alliance (GCEA) is a 501(c)(3) nonprofit organization dedicated to providing essential services and support to individuals affected by epilepsy, seizures, and other brain disorders.
Our Story:
Shena Daly Pearson and her son, Trysten Pearson, founded Gulf Coast Epilepsy Alliance (GCEA) inspired by their personal experience with epilepsy. Trysten's diagnosis of multiple brain and seizure disorders, including epilepsy, at the age of 12, prompted them to recognize the critical need for assistance and education within the Texas Gulf Coast community.
At the young age of 13, Trysten established the UTMB Epilepsy Fund at the University of Texas Medical Branch, situated on Galveston Island. This philanthropic initiative was created while his mother served within the institution, under the leadership of President Dr. David Callendar. The primary objective of this fund is to provide support to the UTMB Department of Neurology's Epilepsy Program, facilitating advancements in research, treatment, and patient care.
For five years, they served the Epilepsy Foundation Texas - Houston, Dallas-Fort Worth, and West Texas. Together, Shena and Trysten worked to advocate for important legislative changes, such as the Texas Compassionate-Use Act and House Bill 684 for Texas Schools. Presently, they are engaged in the development of two new pieces of state legislation related to those with disabilities and epilepsy.
Their efforts also included being featured in an article published by the New York Times, bringing awareness to SUDEP – Sudden Unexpected Death in Epilepsy in collaboration with the Danny Did Foundation. Trysten's accomplishments include reaching the prestigious rank of Eagle Scout with the Boy Scouts of America.
Mission:
At GCEA, we are committed to promoting awareness, education, and advocacy to improve the quality of life for those living with epilepsy, seizures, and other brain disorders in Texas. We offer a range of resources, programs, and events designed to empower individuals and their families in managing their health and well-being.
Vision:
At GCEA, our vision is to create a world where individuals can live free from the limitations of epilepsy, seizures, and other brain disorders.
Services Overview:
1. Social Security Administration (SSA) Assistance Program
GCEA proudly facilitates exclusive bi-monthly meetings with Social Security Administration. We provide assistance to guide individuals through the complexities of the Supplemental Security Income (SSI) application process.
Since January 2024, GCEA has diligently processed 20 SSI Applications, with 13 successfully approved and the remaining in "pending" status. This milestone highlights our organization's commitment to ensuring the eligibility of individuals for benefits. The approval of these applications underscores GCEA's dedication to assisting those in need. This achievement showcases the effectiveness of our program, leading to positive outcomes for deserving applicants.
2. Medical Referral Program
At GCEA, we ensure that individuals receive specialized care from trusted, experienced medical professionals.
3. Community Support Initiatives
At GCEA, we offer complimentary seizure first aid training upon request. In addition, for 10 years hosted a Community Support Program every 2nd Thursday of the month, now held virtually. This event provides essential information and resources by medical professionals related to epilepsy, seizures, brain disorders, and mental health.
4. Canine Partners Program
Enhancing the lives of our members with epilepsy, seizures, or brain disorders by providing them with service dogs, including comprehensive medical care for the lifetime of the dog. This program collaborates with skilled service dog trainers and licensed veterinarians at Animal Alliance of Galveston County. We begin early with a puppy Head-Start Program to instill foundational skills crucial for service dog work. Through our unique initiative, we also supply dog trainers with seizure samples for this specialized training, ensuring puppies are equipped to recognize and respond to seizures effectively.
5. Tim Tebow Foundation & RESONATE Texas
GCEA is honored to serve as a founding member and supporter of the "Mainland Night to Shine Prom", an annual event that celebrates the strength and resilience of our GCEA members.
GCEA is a 501(c)(3) nonprofit organization, all contributions are tax deductible.
EIN# 84-2099498
Seizures are common.
Epilepsy is common.
People with epilepsy can have a hard time getting the medical care they need.
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