Butterfly Release: Sunday, October 20
OCTOBER IS SUDEP-EPILEPSY AWARENESS MONTH
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OCTOBER IS SUDEP-EPILEPSY AWARENESS MONTH
Gulf Coast Epilepsy Alliance (GCEA) is a 501(c)(3) nonprofit organization dedicated to providing essential services and support to individuals affected by epilepsy, seizures, and other brain disorders.
Our Story:
Shena Daly Pearson and her son, Trysten Pearson, founded Gulf Coast Epilepsy Alliance (GCEA) inspired by their personal experience with epilepsy. Trysten's diagnosis of multiple brain and seizure disorders, including epilepsy, at the age of 12, prompted them to recognize the critical need for assistance and education within the Texas Gulf Coast community.
At the young age of 13, Trysten established the UTMB Epilepsy Fund at the University of Texas Medical Branch, situated on Galveston Island. This philanthropic initiative was created while his mother served within the institution, under the leadership of President Dr. David Callendar. The primary objective of this fund is to provide support to the UTMB Department of Neurology's Epilepsy Program, facilitating advancements in research, treatment, and patient care.
For five years, they served the Epilepsy Foundation Texas - Houston, Dallas-Fort Worth, and West Texas. Together, Shena and Trysten worked to advocate for important legislative changes, such as the Texas Compassionate-Use Act and House Bill 684 for Texas Schools. Presently, they are engaged in the development of two new pieces of state legislation related to those with disabilities and epilepsy.
Their efforts also included being featured in an article published by the New York Times, bringing awareness to SUDEP – Sudden Unexpected Death in Epilepsy in collaboration with the Danny Did Foundation. Trysten's accomplishments include reaching the prestigious rank of Eagle Scout with the Boy Scouts of America.
Mission:
At GCEA, we are committed to promoting awareness, education, and advocacy to improve the quality of life for those living with epilepsy, seizures, and other brain disorders in Texas. We offer a range of resources, programs, and events designed to empower individuals and their families in managing their health and well-being.
Vision:
At GCEA, our vision is to create a world where individuals can live free from the limitations of epilepsy, seizures, and other brain disorders.
GCEA is a 501(c)(3) nonprofit organization, all contributions are tax deductible.
EIN# 84-2099498
Seizures are common.
Epilepsy is common.
People with epilepsy can have a hard time getting the medical care they need.
Gulf Coast Epilepsy Alliance (GCEA) of Texas
Gulf Coast Region of Texas, USA
Copyright © 2023 Gulf Coast Epilepsy Alliance - All Rights Reserved.
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