Butterfly Release Ceremony for SUDEP Awareness Month, 2021
You're invited!
Come join Gulf Coast Epilepsy Alliance (GCEA) for an afternoon in the park for October SUDEP Epilepsy Awareness Month.
Enjoy a beautiful butterfly release ceremony, music, food trucks, and friendship, all while supporting GCEA's programs, raising SUDEP Awareness (Sudden Unexpected Death in Epilepsy) and learning how to keep those with epilepsy SAFE.
SUDEP SPEAKER:
Todd Masel, MD
Director, UTMB Epilepsy Program
This event is FREE to attend but registration is required. Everyone is welcome. We would love to have you, your friends, family, and caregivers come join us!
Sunday, October 24, 2021
2:00 PM
Carbide Park
4102 Main Street
La Marque, Texas 77568
[map]
Keep scrolling down for more information...
How do I get involved?
1. Add a Butterfly to the Box ($25 donation)
2. Purchase a Butterfly T-Shirt in our Gift Shop ($18 donation)
3. Become an Event Sponsor (view the PDF below with our sponsorship levels, click on sponsorship donation, then email your logo to info@gceatx.org by Oct. 1st)
4. And, register for (FREE) to join us. Get your tickets today!
For event details sent to your phone, text the word BUTTERFLY to 409-207-7768
Event Sponsors
Sponsorship (see PDF above)
Sponsorship (see PDF above)
Sponsorship (see PDF above)
Event Program
Tentative: Epilepsy Awareness Day at Disneyland, 2022
Travel Grant:
Gulf Coast Epilepsy Alliance (GCEA) is partnering with the #DannyDid Foundation to offer a travel grant to a TEXAS Epilepsy Family seeking support to attend Epilepsy Awareness Day at Disneyland #EADDL.
Epilepsy Awareness Day at Disneyland (EADDL) will take place on (TBA) 2022 in Anaheim, California.
The two-day expo will feature resources from nonprofits, epilepsy centers, drug manufacturers, device companies, seizure dogs and much more!
In November, families will spend the day inside the Disneyland park, wearing purple to celebrate our entire epilepsy community with the DannyDid Foundation!
To request a grant application, please email mduffy@dannydid.org and mention GCEA - Gulf Coast Epilepsy Alliance.
The TEXAS deadline is JUNE 1, 2022.
For more information, visit www.epilepsyawarenessday.org
Danny Did Foundation:
Founded by Chicagoans, Mike and Mariann Stanton, after the Sudden Unexpected Death in Epilepsy (SUDEP) of their son Danny just before his fifth birthday.
The Danny Did Foundation is dedicated in its mission to prevent deaths caused by seizures.
The name of the foundation comes from the last line of Danny's obituary, written by his dad:
Please go and enjoy your life. Danny did.