Trysten J. Pearson was born in Houston, Texas, in July 2001. His story of epilepsy begins with a diagnosis of Grand Mal/Tonic Clonic - Myoclonic - Absence Seizures and a heart condition, Sinus Arrhythmia, at age 12 in August 2013 while visiting family in Huntsville, Texas. After his diagnosis, he found that having epilepsy was not easy to talk about with others which left him feeling alone and excluded. After spending three weeks in the hospital and being told to hide his condition to keep from being held back in life, he and his mother decided it was time to make a difference by raising awareness. It was time to speak up and tackle epilepsy together!
In February 2014, Trysten became one of the co-founders of the Galveston County Epilepsy Awareness Support Group, in partnership with the Epilepsy Foundation Texas, Houston/Dallas-Fort Worth/West Texas. Trysten realized he is not alone, but is 1 in 26 in the United States that will develop epilepsy and found that about 1 out of 10 people may have a seizure during his or her lifetime.
By October of that same year, at age 13, he established the UTMB Epilepsy Fund at the University of Texas Medical Branch (UTMB-Health) in Galveston, Texas. This fund supports Dr. Todd Masel’s Epilepsy Program in the Department of Neurology. Trysten hopes to someday see Galveston County build a Pediatric Epilepsy Monitoring Unit so that children do not have to travel outside the county for this service.
With November being “National Epilepsy Awareness Month”, he worked with the city of Galveston on a 2014 proclamation from the mayor to recognize this special month of awareness.
As an epilepsy advocate, Trysten has delivered, well over 50 presentations since his diagnosis through his Boy Scout Troop 192 - Galveston on First Aid in Epilepsy.
The Galveston Daily News Article by Doreen Hughes on 09.07.2019
The Galveston Daily News Article on 12.24.2019
The Post Newspaper Article on 09.26.2020
The Galveston Daily News – Seaside Scenes by Carla Peoples on 11.13.2020
Trysten has a heart as big as Texas with a great passion to help others and wants you to know that, regardless of epilepsy, he will always enjoy his love of international travel, bowling, fishing, camping and sailing.
Epilepsy will never slow him down as he travels and sails through life!
Your generous donation will fund GCEA's mission
for the Gulf Coast areas of Texas.
GCEA is a 501(c)3 charitable organization,
all contributions are tax deductible. EIN# 84-2099498